Background Caregivers of hemodialysis patients spend a large amount of time providing care to these patients while tolerating fatigue and stress. This study evaluated a family-centered empowerment program on the care burden and self-efficacy of hemodialysis patient caregivers based on social cognitive theory.
Methods In this randomized clinical trial, 70 family caregivers of hemodialysis patients in Isfahan, Iran, were selected and randomly allocated to intervention and control groups, in 2015–2016. Two questionnaires were used to collect the family caregivers’ characteristics, care burden, and self-efficacy, and patients’ negative and positive outcomes expectancies. Data were analyzed using SPSS before, immediately after, and 2 months after the intervention.
Results There was no significant difference in the mean scores of care burden, positive outcomes expectancies, negative outcomes expectancies, and self-efficacy between the two groups before the intervention. However, there were significant differences in the post-test and follow-up data analyses (P<0.05).
Conclusion Given the degenerative nature of chronic kidney disease, it can be considered as a source of long-term and chronic stress for caregivers. Therefore, by implementing an empowerment program, caregiving behaviors can be improved, positive outcomes expectancies can be increased, and negative outcomes expectancies can be reduced.
Citations
Citations to this article as recorded by
Health system related kidney supportive care interventions for adults with chronic kidney disease: A systematic review Dilantha Dharmagunawardene, Sanjeewa Kularatna, Ureni Halahakone, Louise Purtell, Ann Bonner, Helen G. Healy, Sameera Senanayake Journal of Renal Care.2025;[Epub] CrossRef
The impact of a partnership care model on self-efficacy and self-care in hemodialysis patients: A quasi-experimental study Khodayar Oshvandi, Hossein Moradi, Salman Khazaei, Azim Azizi Contemporary Clinical Trials Communications.2025; 44: 101459. CrossRef
Effectiveness of the Family‐Centred Empowerment Model on Informal Caregivers of People With Chronic Diseases: A Systematic Review and Meta‐Analysis Xiao Lin, Fei Fei, Xiaohan Zhang, Yuxin Zhou, Fang Qin, Xia Sun, Yafei Zhang, Jonathan Koffman Journal of Clinical Nursing.2025;[Epub] CrossRef
Effect of family-centered empowerment program on quality of life and caregiving burden in family caregivers of patients with hematologic malignancies: A quasi-experimental study Fatemeh Rashidi, Mohammad Abbasi, Hashim Hamid Shabeeb, Niloofar Ahmadi European Journal of Oncology Nursing.2025; 79: 102996. CrossRef
Development and Evaluation of a Mobile Application to Prevent Recurrent Stroke by Enhancing Self-management on Health Outcomes for Stroke Survivors Young Ju Jeong, Hee Sun Kim, Hyun Goo Kang CIN: Computers, Informatics, Nursing.2024; 42(1): 53. CrossRef
Effectiveness of family centred interventions for family caregivers: A systematic review and meta‐analysis of randomized controlled trials Ziqi Wang, Shuanghan Yu, Yantong Liu, Yujie Han, Wei Zhao, Wei Zhang Journal of Clinical Nursing.2024; 33(5): 1958. CrossRef
Stress management training program to address caregiver burden and perceived stress among family caregivers of patients undergoing hemodialysis: a randomized controlled trial study Ramisa Khouban-Shargh, Seyedmohammad Mirhosseini, Saeed Ghasempour, Mohammad Hasan Basirinezhad, Ali Abbasi BMC Nephrology.2024;[Epub] CrossRef
Telehealth applications used for self-efficacy levels of family caregivers for individuals with dementia: A systematic review and Meta-analysis Burcu Akpınar Söylemez, Ecem Özgül, Özlem Küçükgüçlü, Görsev Yener Geriatric Nursing.2023; 49: 178. CrossRef
The Effects of Nursing Interventions on the Level of Anxiety and Care Burden of the Caregivers of Bedridden Patients B Bayrak, ÇG Özkan, BC Demirbag Nigerian Journal of Clinical Practice.2023; 26(3): 253. CrossRef
Determinants Analysis Factors Affecting the Capability of Family Healthcare of Chronic Kidney Disease with Hemodialysis Virgianty Nur Faridah, Nursalam Nursalam, Ninuk Dian Kurniawati, Isni Lailatul Maghfiroh Open Access Macedonian Journal of Medical Sciences.2023; 11(G): 6. CrossRef
Interventions to Reduce Caregiver Burden Among Caregivers of Chronic Kidney Disease (CKD) Patients: A Scoping Review Sin Yee Chu, Norhayati Ibrahim, Noh Amit, Abdul Halim Abdul Gafor, Rozmi Ismail, Kai Wei Lee, Ching Sin Siau Sage Open.2023;[Epub] CrossRef
Postdischarge Caregiver Burden Among Family Caregivers of Older Trauma Patients Masami Tabata-Kelly, Mengyuan Ruan, Tanujit Dey, Christina Sheu, Emma Kerr, Haytham Kaafarani, Katherine A. Ornstein, Amy Kelley, Tamryn F. Gray, Ali Salim, Bellal Joseph, Zara Cooper JAMA Surgery.2023; 158(9): 945. CrossRef
Family-centered empowerment approach to optimize phosphate management among hemodialysis patients: an experimental study Parvaneh Vasli, Meimanat Hosseini, Malihe Nasiri, Noushin Bakhtiari BMC Nephrology.2023;[Epub] CrossRef
Primary-level and community worker interventions for the prevention of mental disorders and the promotion of well-being in low- and middle-income countries Marianna Purgato, Eleonora Prina, Caterina Ceccarelli, Camilla Cadorin, Jibril O Abdulmalik, Francesco Amaddeo, Lyria Arcari, Rachel Churchill, Mark JD Jordans, Crick Lund, Davide Papola, Eleonora Uphoff, Nadja van Ginneken, Wietse Anton Tol, Corrado Barb Cochrane Database of Systematic Reviews.2023;[Epub] CrossRef
Effect of teaching health-promoting behaviors on the care burden of family caregivers of hemodialysis patients: a four-group clinical trial Mehrdad Hayati, Razieh Bagherzadeh, Mehdi Mahmudpour, Fatemeh Heidari, Hakimeh Vahedparast BMC Nursing.2023;[Epub] CrossRef
Effectiveness of psychosocial interventions on the burden and quality of life of informal caregivers of hemodialysis patients: a systematic review Ana Bártolo, Helena Sousa, Oscar Ribeiro, Daniela Figueiredo Disability and Rehabilitation.2022; 44(26): 8176. CrossRef
An intervention mapping-based support program that empowers patients with endocrine therapy management Susanne Ahlstedt Karlsson, Ingela Henoch, Roger Olofsson Bagge, Catarina Wallengren Evaluation and Program Planning.2022; 92: 102071. CrossRef
Early Comprehensive Kidney Care in Dialysis-Requiring Acute Kidney Injury Survivors: A Populational Study Chun-Yi Wu, Jia-Sin Liu, Cheng-Hsu Chen, Chun-Te Huang, Tung-Min Yu, Ya-Wen Chuang, Shih-Ting Huang, Chih-Cheng Hsu, Ming-Ju Wu Frontiers in Medicine.2022;[Epub] CrossRef
The impact of family intervention programs on the caregiver burden of hemodialysis patients Vincencius Surani, Dewi Elizadiani Suza, Mula Tarigan Kontakt.2021; 23(2): 138. CrossRef
Interventions to improve the well-being of family caregivers of patients on hemodialysis and peritoneal dialysis: a systematic review Ana Carolina Hovadick, Viviane Rodrigues Jardim, Constança Paúl, Adriana Pagano, Ilka Reis, Heloisa Torres PeerJ.2021; 9: e11713. CrossRef